Today was the best day so far! We are making headway. I got in around noon today. Turk and Sandy were already there for a visit. I guess that the nurse had come in shortly before me to give her Benadryl by IV. That put her out like right now. She dozed thru most of Turk and Sandy's visit. Aunt Gail got in right when they left and was there about 15 minutes before Donna got there. Missy slept thru most of that too. Phil got there and she was still sleeping but he said something about Missy and suddenly she commented to that, so she must have been listening at least to some of the conversaion! Although you wouldn't have known that. Donna left after about an hour or so (I lose track of time in the room) and then I decided that I better wake her up or she wouldn't be able to sleep tonight. I brought her in a bathrobe today so Aunt Gail, Missy and I went down to the cafeteria for a bowl of vanilla custard soft serve frozen yogurt. We took it out to the children's play area and ate it at a table in the beautiful weather. It is a large covered outside area, so Missy was protected from the sun. The Dr. said that she has lost the pigment on her face so it needs to be protected. She was bright, alert and totally enjoying being outside. While we were there today Missy did not ask for any additional pain meds. She gets pain meds by mouth every few hours anyway but up until today she has asked for additional meds during the day by IV. (she still needs the pain meds for her debriements though). She also said that for the third time she has cleaned the areas be herself during the debriements. We should find out shortly if she still needs the grafts. If so, that will be a little setback. Today she also was able to remove all this thickened skin on the palm side of her fingers. This thickening of skin has prevented her from straightening her fingers out. She feels totally relieved about that. The OT told her yesterday that it would come off easily when it was ready, and today was the day!
When Missy and I got back to the room from our visit outside with Aunt Gail, Mike was there. We stayed until the end of the first visitation today (a little after 6pm) and then went home. She was a little upset last night about being alone in the evening but it turns out that Chris and Pam stopped by to visit and I believe that Damian stopped by as well. I guess that she was a sleep when they got there and didn't want to wake her up. As the intensity of the pain decreases, it has been easier on her to be alone there. Not sure if I had mentioned it early on or not, but she is in a room with two other patients. The gal across the room from her speaks no English at all. So there can be no visiting there and up until two days ago no one was in the other bed. Two days ago, the patient from hell arrived! She is definately hurt, no doubt about that but she also wants to make everyone elses life miserable as well. Today she was talking to someone (quite loudly) demanding that they come in to see her because she needed a hug. We quietly chuckled on that one. (she's probably in her fifties). Anyway, it's good to be home by 7pm instead of 11pm, as it had been. Again, to all that have called and sent emails of concern and best wishes, thanks for thinking of my daughter and my family.
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